Category Archives: Cerebral palsy
On Monday, I conducted a funeral service for a 43 year old man, Brian Booth, whom I’d known for 25 years. He had never spoken a single word to me, only responding with eye signals and laughs and sounds. Brian lived with cerebral palsy, profound in its limitations. His father shared a story about him.
Brian had a wonderful nurse for a number of years who was originally from Jamaica. Joan was one of those people that Brian would welcome with that beaming dimpled smile. Joan provided Brian with such incredible loving care and he was so appreciative. She would sit in the floor so she would be on his level, and talk to him about all sorts of things. He sincerely enjoyed hearing about other peoples’ trials and travails…so much so that he would laugh out loud when Joan would tell him about things that weren’t going just right. She always said that his laugh would make her forget anything that wasn’t going as expected. She would go home and share Brian’s ministry of laugh with her sister. If things were going off the tracks for her sister, Joan would simple tell her “you need to go see Brian”.
The differently abled and their families have so much to teach us. As a part of that service, I wrote and shared the following.
Yes, Brian was once a little boy.
But not forever. He became a man.
His wheel chair and the helpless limbs kept most of us
From knowing that—but he had a quick mind.
Rapid eyes followed all that passed by.
He did not miss any of life. He lived it
even if it wasn’t like yours and mine.
He lived his days knowing father and mother love
Far more than many who never have it at all;
Brothers and sisters made him laugh
and loved him, loved to be with him and whatever
Scrapes they might have had with each other they knew
What was said to Brian always stayed with Brian
No matter what.
It’s easy to see only limbs that don’t work
And stop seeing a brain that does, a heart that feels,
A young man’s understanding soul inside that laughed
At the name of Jesus. When did you last
Show your Lord such honor?
Reese’s peanut butter cups were just this side of heaven;
Barney on the other hand, never made the cut. Something
About a man in a purple dinosaur suit hit Brian wrong.
But of all the things of earth, the bad was a very short list.
How well have I done to avoid whining,
or being critical, complaining and unhappy?
And what reasons do I have for my hurried ingratitude?
Life is gift, but to know it while you live it? That’s pure grace.
He did. He caused so much love, beyond mere pity.
Yes and No with his eyes would do for ordinary things.
Smiles and laughter and groans and moans
For all the rest. And that is enough to live a life
Impart love to all around you and make it worthwhile
to have been here at all.
It’s the wake behind the boat that shows its power. Not admiration or envy
But waves and waves of love and the ache of its departure..
He was here. Jesus loved him. And he knew it.
That should be enough for any of us. The rest is for show.